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Graphic: A Full Life Ahead (inside a yellow road sign), a road and icons for home, friends, work, love, play, money and food [icons CC Money by ✦ Shmidt Sergey ✦ from the Noun Project friends by Sewon Park from the Noun Project Work by sandra from the Noun Project Video Game by 杨皓棱 YHL from the Noun Project Pizza by Adrien Coquet from the Noun Project]




Mass Down Syndrome Congress (Lower Level Conference Room)
20 Burlington Mall Road Burlington, MA


Jun 18 2019


7:00 pm - 9:00 pm

A Full Life Ahead Workshop: Making Decisions about Healthcare [Burlington]

Whether your loved one with disabilities is 14 or 44, supporting any decisions related to healthcare can be challenging and complex. Join us for a discussion about how to approach making healthcare decisions in partnership with your loved one, no matter their support needs, and an introduction to helpful tools and worksheets to support this process.


  • Elizabeth Bostic is the parent of a young man with complex medical needs and has served families as a special education advocate for the past 15 years. She has been on the Board of the Arc of Massachusetts, is the past president of the Special Needs Advocacy
    Network, Inc., and is currently serving on the Board of the Federation for Children with Special Needs.
  • O. Sophia Johansson is raising a child with complex behavioral health needs and communication challenges and has personal experience supporting a loved one with disabilities throughout their end of life care. She serves as MFOFC’s Northeast Regional Coordinator and Co-Chair of the Board of Directors.


RSVP to:
O. Sophia Johansson, MFOFC Northeast Regional Coordinator
Email: o.sophia.johansson@gmail.com
Phone: 617-935-2264

This workshop is offered by Mass Families Organizing for Change in partnership with Massachusetts Down Syndrome Congress and Riverside Community Care as part of our A Full Life Ahead series: Workshops for parents and guardians on transition, employment, housing, relationships, and other topics that will lead to interdependent, full lives in the community.


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